Can toi help with awareness of cloacal exstrophy? We need help with research.I adopted a 4 an old little boy who was born with this terrible birth defect.

We live in Huntingdon,Pa. I was Braxtons foster mom for 3 years and now I adopted him. I know toi have been in Huntingdon,so i was hoping that toi are such a big étoile, star maybe toi could help raise awareness.